27th August 2021
Timothy Dickson has Ehlers-Danlos syndrome, also known as EDS, which affects his joints and causes him chronic pain and fatigue. He also has autism and, five years ago, he received a specialist bed from Newlife the Charity for Disabled Children to keep him safe through the night as he only slept for a few hours and would often try to eat non edible objects, like carpet.
Timothy hoped to raise at least £1,000 for the charity which helped him by walking the equivalent distance of the border between the Earth's atmosphere and outer space over the course of the summer – starting on Saturday June 12.
Timothy, who couldn’t talk until he was aged four, has developed a very formal way of speaking as part of his condition and he was unable to walk properly until he was 2-year-old. As he still struggles physically he walked around his local village of Tuxford in 2.5km loops, taking 40 laps to complete 100km (66 miles). His aim was to complete this walk by September 1st. But his determination saw him cross the finish line on the 24th July!
Timothy, whose greatest ambition is to go to Mars, said: “Newlife helped me get a specialist sleeping pod which I use to keep me safe at night. I decided this year that I wanted to try and raise some money so that they can help another child like me. I ran a photo competition and raised £120 and my next challenge is to walk to space. The Karman line is 100km away so I am going to walk that distance over the summer. I would really like to raise at least £1000, as this is one fifth of the cost of a specialist bed like mine.
“My bed keeps me safe and is my special place. I know there are lots of children like me who needs specialist equipment that the NHS can’t fund or are only able to supply a very basic model, when actually a more specific model is needed."
Timothy is crazy about space. He loves reading and learning about space and he even wore his favourite NASA suit for some of his walk. He has recieved tweets of support from professor Brian Cox and astronaught Tim Peake during his challenge.
Timothy has smashed his target of raising £1,000 and, according to his facebook page Timothy's Walk to Space! His total now stands at:
He total stands at
Grand total: £3340!
Congratulations Timothy from everyone at IRIS!